The use of electronic health records may improve health care quality, information sharing for evidence based approaches and policies, and reduce the cost of care provision. The International Association for Hospice and Palliative Care (IAHPC) is pleased to announce a joint collaboration project with the Fundación FEMEBA (Federación Médica de Buenos Aires, Argentina) to develop a Global Palliative Care Database (GPCD) from palliative care (PC) services from around the world.
The database shows the similarities and differences among reasons for referral and time of referral to PC services, as well as prescribed therapeutic interventions and referrals to other disciplines. The system registers items adapted from “An essential package of palliative care and pain relief health services” in The Lancet Commission on Global Access to Palliative Care and Pain Relief Report (2018).
Following confidentiality guidelines, no sensitive data is requested or recorded.
The GPCD allows users to register, analyze, and have access to information (general, demographic, and epidemiological / clinical) about the initial consultations of patients accessing PC services. If the user gives authorization to share its data, the system offers two options: one to see their own data and another to see collated data.
The GPCD generates instantaneous reports on screen and offers the option to download the data in Excel spreadsheets containing all the anonymized information supplied by the services. The video below provides a glimpse on how the database provides collated information:
Individuals working in PC provision from around the globe are welcome to participate. Those interested in participating in this project must meet the following criteria:
Individuals who participate in the project will be provided with a free six-month extension of their membership as a gesture of gratitude for their contribution and effort to advance global PC.
To enroll in the project and access the database, you will need your IAHPC membership number and the email affiliated to your membership.
If you need your membership number or additional information on how to renew, please contact Genevieve Napier, IAHPC Programs Officer.