Each month, we publish a selection of items that may be of interest to our global readership. Contributions are welcomed; we reserve the right to edit content.
Please also consider promoting your education and training events in the IAHPC Global Directory of Education in Palliative Care. It’s quick and easy — just submit your content online.
Find the workshop, seminar, congress, or conference that speaks to you in the IAHPC Calendar of Events. The IAHPC calendar is updated regularly and lists activities of special interest to those who work in palliative care.
Events added last month (in chronological order):
See all listings, find links to abstract submissions, or submit a conference or seminar to the IAHPC calendar here.
The New South Wales government has unveiled its plan to build the country’s first hospice for young adults; construction is scheduled to begin in 2020.
A community fundraising program has been launched and the government has pledged an annual contribution of $2 million for the hospice, which will be designed for adolescents and young adults with life-limiting conditions requiring short-term respite care, symptom management, or end-of-life care.
Last year, the NSW Government committed an additional $100 million over four years on top of the record $210 million a year for palliative and end-of-life care services. Several benefactors have reportedly pledged significant monies toward the capital cost of the new hospice.
The U.S. National Hospice & Palliative Care Organization has released its complete 2019 Webinar Series, including pricing. If you cannot attend a live presentation, MP4 recordings are readily available and are included in the price of the Webinar. The recording can be downloaded up to five years after the purchase date.
Upcoming 2019 Webinar topics include: Improving Access for Diverse/Marginalized Populations, Clinical Assessment and Documentation, Improving Interdisciplinary Practice through Patient/Family Inclusion, and Advanced Pain Management.
A two-day workshop on ‘Outcome Measure in Palliative Care: Using the POS Family of Measures’ takes place 7-8 February 2019 at the Cicely Saunders Institute, King’s College London.
The aim of the workshops, as described, is ‘to introduce and support the use of the POS family of measures in clinical, research and care settings. The event is for all professionals (nursing, doctors, physiotherapists, psychologists, occupational therapists, social workers, managers, allied professionals, commissioners and researchers) with an interest in palliative and end-of-life care.’
We want to share things that you have found useful to your advocacy, your practice, your professional development, for those under your care or for their loved ones. It could be a website, organization, article, blog, book, podcast, quote, words of advice — anything that helped or inspired you, which may help or inspire others.
You may choose whether or not to publish your name and affiliation, but we will publish the city and country where you practice. Do include a sentence or two about why you are making the recommendation. We will be seeking your recommendations throughout the year, and will publish them as they arrive. Email yours to me at: [email protected] — Alison Ramsey, Newsletter Editor
Moments of Life: Made Possible by Hospice is a 2014 project by the U.S. National and Palliative Care Organization (NHCPO) that remains a captivating online video catalog showing what people receiving hospice care genuinely experience.
Research commissioned by NHPCO found a vast majority of people (96%) who have had a personal connection to hospice through a family member or friend are left with a positive impression of what hospice care can do. However, most Americans don’t have this personal experience.
Moments of Life stores are from different points of view, including patients, family caregivers, and hospice professionals.
The Cecily Saunders Institute in London, England, has developed a Palliative Care Outcome Scale in 12 languages and for different groups. Most recently, an African Palliative Care Outcome Scale was developed. The Institute is always looking for academic and clinical centers interested in translating and validating POS measures in new languages, settings, and disease groups. If you are interested, contact the Institute here.
Four new resources have been added to IAHPC’s Language Matters (in the Policy and Ethics section of our website):
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