The primary focus of this literature search is selected articles, etc., on key issues in end-of-life care for which the full text is available online. Added, however, are a few noteworthy articles, etc., but for which access to the full text is available only with a subscription or for a one-time fee for the article in question.1 Also listed are a few postings of special interest on key websites that serve the hospice and palliative care communities-at-large, and selected news media reports. The next listing will be published in approximately four to six weeks.
Articles of particular interest.
Libraries in educational institutions and medical centres may have a subscription to the journal in question and hold a photocopying licence, which may facilitate cost-effective access.
1.2 ‘Public policy on palliative care and its implications for services, opioids, and education in Colombia,’ Revista Cuidarte, 2023;14(2):e2501. Full Spanish language text (w. English language abstract)
2.2 ‘Healthcare professionals’ experiences of end-of-life care: A review of the literature,’ Journal of Modern Nursing Practice & Research. Posted online 1 October 2023. Full text
2.3 ‘Teaching to prepare undergraduate nursing students for palliative care: Nurse educators’ perspectives,’ BMC Nursing. Posted online 27 September 2023. Full text
Website Posting of Interest: ‘Palliative care: Education and training opportunities for primary care and aged care workers,’ Department of Health & Aged Care, Australian Government. Posted online 22 September 2023.
N.B. The focus of the current issue of Health Affairs is tackling structural racism in health. Journal contents page
4.2 ‘Comprehensive analysis of mortality in a hospital center in the year 2020 and the provision of palliative care in current medical practice,’ Medical Research Archives. Posted online 30 September 2023. Full text (click on pdf icon)
3.2 ‘Do palliative care research priorities match those for its care? A journals content analysis 2021–2022,’ Progress in Palliative Care. Posted online 12 September 2023. Abstract (w. link to references)
Community & Home-Based Palliative Care
N.B. Part 2: Advice for the family caregiver, information about pain medication, and communication when death is imminent will be published in the November issue of the Association’s newsletter.
1.2 ‘“What if I die before him?”: Concerns of caregivers in palliative care,’ Journal of Contemporary Medicine. Posted online 30 September 2023. Full text
1.3 ‘The upsides, downsides to home-based palliative care programs,’ Health Care News. Posted online 29 September 2023. Full text
1.4 ‘Patient and family as the unit of care: A half-truth of palliative care,’ Journal of Palliative Medicine. Posted online 29 September 2023. First page view
1.5 ‘Support given by health professionals before and after a patient’s death to relatives involved in general palliative care at home in Sweden: Findings from the Swedish Register of Palliative Care,’ Palliative & Supportive Care. Posted online 25 September 2023. Full text
1.6 ‘The caregiver’s perspective on end-of-life inpatient palliative care: A qualitative study,’ Annals of Medicine. Posted online 22 September 2023. Full text
1.7 ‘The effectiveness of community-based palliative care programme components...,’ Age & Aging. Posted online 16 September 2023. Full text
1.8 ‘Substantial shift in palliative care from hospice to community and its integration into community-based primary health care,’ Journal of Medical-Clinical Research & Reviews, 2023;7(9):1-7. Full text
Care Planning & Serious Illness Conversations
2.2 ‘A quality improvement initiative to increase documentation of preferences for life-sustaining treatment in hospitalized adults,’ The Joint Commission Journal on Quality & Patient Safety. Posted online 28 September 2023. Abstract (w. intro., section snippets, etc., references)
2.3 ‘Family carers’ experiences of goals-of-care conversations in acute hospital settings,’ Journal of Applied Gerontology. Posted online 20 September 2023. Full text
2.4 ‘Shared decision making with frail people with intellectual disabilities in the palliative phase: A process evaluation of the use of the In-Dialogue Conversation Aid in practice,’ Journal of Applied Research in Intellectual Disabilities. Posted online 16 September 2023. Full text
2.5 ‘Testing the What Matters to Me workbook in a diverse sample of seriously ill patients and caregivers,’ Patient Education & Counseling. Posted online 16 September 2023. Full text
2.6 ‘Parent experience of advance care planning: Reconstructing meaning – grounded theory,’ BMJ Supportive & Palliative Care. Posted online 12 September 2023. Full text
2.7 ‘Video intervention and goals-of-care documentation in hospitalized older adults: The VIDEO-PCE Randomized Clinical Trial,’ JAMA Network Open. Posted online 11 September 2023. Full text
2.8 ‘The mapping of influencing factors in the decision-making of end-of-life care patients: A systematic scoping review,’ Indian Journal of Palliative Care, 2023;29(3):234-242. Full text
3.2 ‘An agenda to develop pediatric palliative care programs to serve children with life-threatening and life-limiting conditions in the Gulf Cooperation Council countries,’ Palliative Care & Social Practice. Posted online 29 September 2023. Full text
3.3 ‘A call to improve paediatric palliative care quality through research,’ BMC Palliative Care. Posted online 26 September 2023. Full text
3.4 ‘Fathers' experiences of living with a child with a progressive life-limiting condition without curative treatment options: A qualitative systematic review,’ Journal of Advanced Nursing. Posted online 26 September 2023. Full text
3.5 ‘Establishing goals of care in serious and complex pediatric illness,’ Pediatric Clinic of North America. Posted online 19 September 2023. Abstract (w. intro., section snippets, etc., references)
3.6 ‘A new scale assessing the stressors and rewards of children’s hospice work,’ BMC Palliative Care. Posted online 13 September 2023. Full text
3.7 ‘The science to spirituality in paediatric palliative care: A commentary,’ Indian Journal of Palliative Care, 2023;29(3):336-339. Full text
3.8 ‘Pediatric nurses’ perceived competencies toward palliative care for terminally ill children,’ Asian Pacific Journal of Cancer Prevention, 2023;24(9):3275-3282. Full text (click on PDF icon)
Call for Papers: ‘Pediatric palliative care,’ BMC Palliative Care. Accessed 26 September 2023. Deadline for submissions 9 February 2024.
Website Postings of Interest: ‘The Children’s Palliative Care Education & Training Education Standard Framework for Advance Care Planning in Children,’ International Children’s Palliative Care Network, 26 September 2023; ‘New Nuffield report recommends help to resolve care disagreements.’ Together for Short Lives, 18 September 2023; ‘Identifying who children’s palliative care is for,’ Together for Short Lives, 14 September 2023.
Breaking Bad News
4.2 ‘A literature review of nurses challenges and barriers in assisting patients and families facing breaking bad news,’ Indian Journal of Palliative Care, 2023;29(3):243-249. Full text
Perinatal Palliative Care
5.2 ‘“Holding families in uncertainty”: A framework analysis of the role and impact of children's hospices in the provision of perinatal palliative care,’ Illness, Crisis & Loss. Posted online 16 September 2023. Full text
7.2 ‘HIV and an ageing population: What are the medical, psychosocial, and palliative care challenges in healthcare provisions,’ Microorganisms. Posted online 28 September 2023. Full text
7.3 ‘Uncovering methods and outcomes of palliative care for geriatric patients: A scoping review,’ Journal of Multidisciplinary Healthcare. Posted online 27 September 2023. Full text
7.4 ‘Pre-assessment criteria for the needs of patients in palliative care: The role of palliative care by age groups,’ Turkish Journal of Geriatrics, 2023;26(3): Full text (click on PDF icon)
8.2 ‘Changes in hospice care experiences during the COVID-19 pandemic,’ Journal of the American Geriatrics Society. Posted online 19 September 2023. Full text
9.2 ‘Palliative care at any stage of amyotrophic lateral sclerosis: A prospective feasibility study,’ Frontiers in Medicine. Posted online 13 September 2023. Full text
9.3 ‘End-of-life care of hospitalized patients with Parkinson disease: A retrospective analysis and brief review,’ Frontiers in Aging Neuroscience. Posted online 6 March 2023. Full text
10.2 ‘Palliative and end-of-life care for LGBT+ cancer patients: Scoping the problems and identifying the solutions,’ Seminars in Oncology Nursing. Posted online 20 September 2023. Full text
11.2 ‘Vital signs in palliative care: A scoping review,’ Cancers. Posted online 20 September 2023. Full text
11.3 ‘Palliative and end-of-life care for LGBT+ cancer patients: Scoping the problems and identifying the solutions,’ Seminars in Oncology Nursing. Posted online 20 September 2023. Full text
11.4 ‘Caregiver’s quality of life in advanced cancer: Validation of the construct in a real-life setting of early palliative care,’ Frontiers in Oncology. Posted online 14 September 2023. Full text
11.5 ‘Assessing the impact of palliative care admission of end-of-life cancer adults,’ Palliative Care & Social Practice. Posted online 11 September 2023. Full text
For-Profit Hospices in the U.S.
News Media Report: ‘The most expensive states to die in, ranked,’ Forbes. Posted online 13 September 2023. Full text
13.2 ‘Palliative care survey: Awareness, knowledge and views of the Styrian population in Austria,’ Healthcare. Posted online 22 September 2023. Full text
13.3 ‘Top 10 tips palliative care clinicians should know about messaging for the public,’ Journal of Palliative Medicine. Posted online 22 September 2023. Abstract
13.4 ‘Public sentiments and the influence of information-seeking preferences on knowledge, attitudes, death conversation, and receptiveness toward palliative care: Results from a nationwide survey in Singapore,’ Palliative Care & Social Practice. Posted online 15 September 2023. Full text
13.5 ‘What does the general public know about palliative care...,’ BMJ Supportive & Palliative Care. Posted online 12 September 2023. Abstract
13.6 ‘How can palliative care help me?’ JAMA Internal Medicine (Patient Page). Posted online 11 September 2023. Full text
14.2 ‘A perspective on potential psychological risks and solutions of using virtual reality in palliative care,’ Frontiers in Virtual Reality. Posted online 13 September 2023. Full text
Intensive Care Medicine
15.2 ‘Examining the role of race in end-of-life care in the intensive care unit: A single-center observational study,’ Palliative Medicine Reports. Posted online 11 September 2023. Full text
Psychosocial-Spiritual Aspects of Palliative Care
16.2 ‘Psychosocial-spiritual well-being is related to resilience and mindfulness in patients with severe and/or life-limiting medical illness,’ BMC Palliative Care. Posted online 11 September 2023. Full text
Website Posting of Interest: ‘Psychosocial palliative care – a series of three articles,’ Association of Palliative Care Centres (Cape Town, South Africa). Accessed 11 September 2023.
17.2 ‘Emergency nurses’ perceptions of end-of-life care obstacles and supportive behaviors in Chengdu, the People’s Republic of China,’ Nursing Journal CMU,’ 2023;50(3) Full text (click on PDF icon)
Professional Issues: Self-Care
18.2 ‘We care: A wellness intervention project for palliative care physicians,’ Journal of Pain & Symptom Management. Posted online 12 September 2023. Abstract (w. intro., section snippets, etc., references)
Disparities in Palliative & End-of-Life Care
Grief & Bereavement
1.2 ‘Charity Marie Curie reframes end-of-life care in touching brand update.’ Little Black Book, 4 October 2023.
1.3 ‘A manifesto for palliative and end of life care.’ Hospice UK (in partnership with Marie Curie, the National Bereavement Alliance, Sue Ryder and Together for Short Lives), 2 October 2023.
1.4 ‘England’s adults’ hospices have faced a real-terms cut in their Government funding of £47 million in the past two years, according to new data from Hospice UK.’ Hospice UK, 26 September 2023.
1.5 ‘Hospices: Health care providers, commercial businesses – or both?’ Hospice UK, 14 September 2023.
1.6 ‘End-of-life doula U.K. evaluation: Leeds and surrounding areas NHS Commission,’ The Open University. Accessed 14 September 2023.
N.B. The last updated backgrounder, ‘End-of-Life Care in the Prison Environment,’ was posted on the Palliative Care Network website in August 2022. Occasional “supplements” listing selected articles, reports, etc., published in the literature and in the news media in recent weeks will be posted on this website. Supplement #1 (July 2023) can be downloaded at.
3.2 The Truacanta Project: Helping Each Other With Death, Dying, Loss & Care.’ Scottish Partnership for Palliative Care. Accessed 20 September 2023.
5.2 ‘Palliative care study finds patients and caregivers feel obliged to give and receive support.’1 Trinity College Dublin, 11 September 2023.
‘Patient and caregiver reciprocal support: Impact on decision making in specialist palliative care,’ Journal of Pain & Symptom Management. Posted online 4 August 2023 (noted in IAHPC Literature Search #5, August 2023). Full text
5.3 ‘Recognising palliative care as a public health issue is important as more and more people will need it in months and years ahead,’ The Irish News. Posted online 11 September 2023. Full text
N.B. The author cites the following: ‘Department of Health’s Advance Care Planning Policy document for Northern Ireland’ –; ‘Report of The Lancet Commission on the Value of Death: Bringing death back into life’ (2022) –; ‘Where Are We Now? Examining public knowledge and attitudes towards palliative care and advance care planning in Northern Ireland,’ University of Ulster (2021) –;
1.2 ‘What is a death doula? The growing field for end-of-life care explained,’ NBC News. Posted online 26 September 2023. Full text (w. video clip)
1.3 ‘Navigating end-of-life care decisions: The vital role of social workers,’ UJ City News (Florida). Posted online 25 September 23. Full text
1.4 Study finds gap between what rural residents want for end-of-life care and what they receive,’1 The Daily Yonder (Whitesburg, Kentucky). Posted online 12 September 2023. Full text
2.2 ‘Parents must have a say in end-of-life care cases for children where they disagree with medical professionals, review recommends,’1 The Daily Mail. Posted online 19 September 2023. Full text
3.2 ‘End-of-life care – infusing the “person” back into the ‘patient,’ Health Debate. Posted online 6 September 2023. Full text
5.2 ‘Recognising palliative care as a public health issue is important as more and more people will need it in months and years ahead,’ The Irish News. Posted online 11 September 2023. Full text