The primary focus of this literature search is selected articles, etc., on key issues in end-of-life care for which the full text is available online. Added, however, are a few noteworthy articles, etc., but for which access to the full text is available only with a subscription or for a one-time fee for the article in question.1 Also listed are a few postings of special interest on key websites that serve the hospice and palliative care communities-at-large, and selected news media reports. The next listing will be published in approximately four to six weeks.
Articles of particular interest.
Libraries in educational institutions and medical centres may have a subscription to the journal in question and hold a photocopying licence, which may facilitate cost-effective access.
Related:
1.2 ‘Exploring critical factors in pediatric palliative care in Latin America: A scoping review,’ Global Public Health. Posted online 29 January 2024. Full text
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3.2 ‘Study of palliative care demonstrates scalable strategy to increase support for seriously ill patients in hospital,’ Medical Xpress. 1 Posted online 16 January 2024. Full text
Website Posting of Interest: ‘Largest-ever study of palliative care demonstrates scalable strategy to increase support for seriously ill patients in the hospital,’ Medical Update Online (U.K.). Posted online 4 February. Full text
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Website Posting of Interest: ‘Evidence gap map for palliative care in Africa,’ eHospice, 13 January 2024
News Media Report of Interest: ‘Rwanda: Understanding palliative care – why a mindset change is needed to address gaps,’ All Africa. Posted online 29 January 2024. Full text
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3.2 ‘Put on the sidelines of palliative care: A qualitative study of important barriers to GPs’ participation in palliative care and guideline implementation in Norway,’ Scandinavian Journal of Primary Care. Posted online 30 January 2024. Full text
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5.2 ‘“You can’t die here”: An exploration of the barriers to dying-in-place for structurally vulnerable populations in an urban centre in British Columbia, Canada,’ BMC Palliative Care. Posted online 10 January 2024. Full text
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Website Posting of Interest: ‘The cruel irony in hospice Certificate-of-Need laws,’ Independent Women’s Forum (U.S.), 9 January 2024.
N.B. Certificate-of-Need laws are regulations that require healthcare providers to get special permission from the government before adding or expanding healthcare services or facilities.
News Media Report of Interest: ‘Hospice providers must be better regulated,’ Scientific American. Posted online 1 February 2024. Full text;
N.B. The authors sampled four subject categories including end-of-life care.
Website Postings of Interest: ‘The 40-page plan for palliative care reform in 2024 Federal budget,’ Aged Care Guide (Australia), 2 February 2024; ‘Approval of the National Palliative Care Policy in Brazil,’ eHospice, 15 January 2024.
News Media Report of Interest: ‘Nigeria’s paradigm shift in cancer care: A review of National Hospice & Palliative Care Policy,’ BNN. Posted online 14 January 2024. Full text
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1.2 ‘Interpersonal energy: New and bold directions in palliative care health professions education research,’ Palliative Medicine. Posted online 24 January 2024. Full text
News Media Report of Interest: ‘Keys to effective palliative care training models,’ Hospice News (U.S.). Posted online 24 January 2025. Full text
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2.2 ‘Defining key elements of a clinical experience in hospice and palliative medicine for medical residents in the United States,’ Journal of Medical Education & Curricular Development. Posted online 23 January 204. Full text
2.3 ‘Palliative care training in medical undergraduate education: A survey among the faculty,’ BMC Palliative Care. Posted online 18 January 2024. Full text
2.4 ‘Feasibility and effectiveness of a two-tiered intervention involving training and a new consultation model for patients with palliative care needs in primary care: A before-after study,’ Palliative Medicine. Posted online 16 January 2024. Full text
2.5 ‘Gaps in medical school in the approach to ethics, bioethics, and palliative care: A challenge for professional training,’ Cuadernos de Educación y Desarrollo, 2024;16(1):2258-2266. Full text
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3.2 ‘Increasing access to care: Designing a blended curriculum to educate adult hospice nurses in caring for pediatric patients,’ Nursing Forum. Posted online 29 January 2024. Full text
3.3 ‘The insertion of the physical education professional in pediatric palliative care: A critical review of the literature,’ Residência Pediátrica (Sociedade Brasileira de Pediatria). Accessed 11 January 2024. Full (English language) text
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4.2 ‘Study: Nursing student beliefs about death and dying can affect end-of-life care,’ 1 Nurse Journal. Posted online 8 January 2024. Full text
N.B. This is a preprint; it has not been peer reviewed by a journal.
Website Posting of Interest: The 2024 Pledge4Action to improve availability of controlled medicines,’ eHospice, 23 January 2024.
News Media Report of Interest: ‘From access barriers to educational gaps: The research trends impacting future palliative care delivery,’ Hospice News (U.S.). Posted online 26 January 2024. Full text
Website Posting of Interest: ‘How can psychologists shape the future of end-of-life care research?’ British Psychological Society (U.K.), 22 January 2024.
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1.2 ‘Palliative care providers’ and administrators’ perspectives on integrating community-based palliative care using the social determinants of health framework,’ Palliative Medicine Reports. Posted online 5 February 2024. Full text
1.3 ‘Comparing situational influences on differential healthcare utilization trajectories in patients on home palliative care: A qualitative study,’ Palliative & Supportive Care. Posted online 1 February 2024. Full text
1.4 ‘Exploring networks of care in the end-of-life context through eco maps: Feminist perspectives on caregiving in between family, community, and professionals in Sweden,’ Community Work & Family. Posted online 29 January 2024. Full text
1.5 ‘Family perspectives on key elements of good home palliative care in South and Southeast Asia: A scoping review,’ Home Health Care & Management. Posted online 28 January 2024.
1.6 ‘Cost and utilization implications of a health plan’s home-based palliative care program,’ Journal of Palliative Medicine. Posted online 25 January 2024. Full text
1.7 ‘Family caregivers’ preferences for support when caring for a family member with cancer in late palliative phase who wish to die at home: A grounded theory study,’ BMC Palliative Care. Posted online 11 January 2024. Full text
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2.2 ‘Muslims and end-of-life healthcare in non-Muslim majority nations: A systematic literature review,’ Journal of Pain & Symptom Management. Posted online 11 January 2024. Abstract (w. intro., section snippets, references)
Website Posting of Interest: ‘Culturally Sensitive Communications to Enhance Care Delivery: A Resource Guide for Healthcare Professionals,’ National Hospice & Palliative Care Organization (U.S.), 30 January 2024.
News Media Report of Interest: ‘“People die like that”: Native Americans face serious barriers in accessing care,’ Missoulian (U.S.). Posted online 16 January 2024. Full text
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3.2 ‘Improving end-of-life care for people with dementia: A mixed-methods study,’ BMC Palliative Care. Posted online 30 January 2024. Full text
3.3 ‘Does a novel community-based outpatient palliative care intervention for Parkinson’s disease and related disorders improve care? Qualitative results from patients and care partners,’ Palliative Medicine. Posted online 24 January 2024. Full text
3.4 ‘Hospice and end-of-life care for multiple sclerosis – its importance and management strategies,’ iCliniq. Posted online 22 January 2024. Full text
3.5 ‘Palliative care aspects in multiple sclerosis,’ Journal of Pain & Symptom Management. Posted online 13 January 2024. Abstract (w. intro., section snippets, references)
3.6 ‘Perceptions of palliative care in Huntington’s disease: A qualitative study,’ Parkinsonism & Related Disorders. Posted online 12 January 2024. Abstract (w. intro., section snippets, references)
3.7 ‘What care do people with dementia receive at the end of life? Lessons from a retrospective clinical audit of deaths in hospital and other settings,’ BMC Geriatrics. Posted online 9 January 2024. Full text
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4.2 Home-based pediatric hospice and palliative care provider visits: Effects on healthcare utilization,’ Journal of Pediatrics. Posted online 1 February 2024. Full text
4.3 ‘Current status of pediatric palliative care and decision making in Japan,’ Current Problems in Pediatric & Adolescent Health Care. Posted online 29 January 2024. Abstract (w. intro., section snippets, references)
4.4 ‘How do children with medical complexity die? A scoping review,’ Journal of Palliative Medicine. Posted online 29 January 2024. Full text
4.5 ‘Flourishing, religion, and burnout among caregivers working in pediatric palliative care,’ International Journal of Psychiatry in Medicine. Posted online 27 January 2024. Full text
4.6 ‘Palliative care for newborns in India: Patterns of care in a neonatal palliative care program at a tertiary government children’s hospital,’ Health Services Insights. Posted online 23 January 2024. Full text
4.7 ‘Pilgrimage in pediatric palliative care: The journey of caregivers,’ Social Science & Medicine. Posted online 14 January 2024. Full text
4.8 ‘The needs of healthcare personnel who provide home-based pediatric palliative care: A mixed method systematic review,’ BMC Health Services Research. Posted online 9 January 2024. Full text
Website Posting of Interest: ‘Specialist paediatric palliative care delivered to children who died in 2021,’ Australian Institute of Health & Welfare. Updated 25 January 2024.
News Media Report of Interest: ‘Children in palliative care: “The system is not aware that minors die,’” The Limited Times (Spain). Posted online 28 January 2024. Full text
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5.2 ‘A conceptual model of the nurse’s role as primary palliative care provider in goals of care communication,’ PEC Innovation. Accessed online 1 February 2024. Full text
5.3 ‘Complex advance care planning intervention in general practice (ACP-GP): A cluster-randomised controlled trial,’ British Journal of General Practice. Posted online 22 January 2024. Full text
5.4 ‘Integration of psychosocial theory into palliative care: Implications for care planning and early palliative care,’ Cancers. Posted online 13 January 2024. Full text
5.5 ‘A conceptual model of the nurse’s role as primary palliative care provider in goals-of-care communication,’ PEC Innovation. Posted online 12 January 2024. Full text
5.6 ‘Caregivers and family members’ vulnerability in end-of-life decision-making: An assessment of how vulnerability shapes clinical choices and the contribution of clinical ethics consultation,’ Philosophies. Posted online 11 January 2024. Full text
5.7 ‘Adjusting advance care planning to older people’s needs: Results from focus groups and interviews,’ BMC Health Services Research. Posted online 10 January 2024. Full text
5.8 ‘Adaptive care planning: A paradigm shift,’ Journal of the American Geriatric Society. Posted online 9 January 2024. Full text https://agsjournals.onlinelibrary.wiley.com/doi/10.1111/jgs.18731
News Media Report of Interest: ‘“Death is not a taboo”: Three-quarters of respondents to Hong Kong survey willing to set up advance medical directives,’ South China Morning Post. Posted online 16 January 2024. Full text
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6.2 ‘Paramedics and hospice join forces to share end-of-life care knowledge,’ Emergency Services Times. Posted online 19 January 2024. Full text
7.2 ‘Psychosocial intervention in palliative care: What do psychologists need to know,’ Journal of Health Psychology. Posted online 28 January 2024. Full text
7.3 ‘The gift of here and now at the end of life: Mindful living and dignified dying among Asian terminally ill patients,’ Palliative & Supportive Care. Posted online 25 January 2024. Full text
7.4 ‘Positive psychological well-being in early palliative care: A narrative review of the roles of hope, gratitude, and death acceptance,’ Current Oncology. Posted online 24 January 2024. Full text
7.5 ‘Interdisciplinary strategies for establishing a trusting relation as a pre-requisite for existential conversations in palliative care: A grounded theory study,’ Research Square. Posted online 24 January 2024. Full text
N.B. This is a preprint; it has not been peer reviewed by a journal.
7.6 ‘Spiritual care, compassion for others and light triad among clergy, social workers and hospice staff,’ Palliative Medicine in Practice (Polish Association of Palliative Care). Posted online 18 January 2024. Full text (click on pdf icon)
Website Posting of Interest: ‘Improving spiritual care: The impact of a study between a hospice and university,’ eHospice (U.K.), 9 January 2024.
News Media Report of Interest: ‘The emotional terrain of palliative care,’ Free Malaysia Today. Posted online 10 January 2024. Full text
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8.2 ‘Use of palliative care for ICU patients, families,’ 1Yale School of Medicine (U.S.), 8 January 2024.
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9.2 ‘Patient and family preferences about place of end-of-life care and death: An umbrella review,’ Journal of Pain & Symptom Management. Posted online 17 January 2024. Full text
Website Posting of Interest: ‘Where do we end our lives?’ American Council on Science & Health. Posted online 5 February 2024.
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10.2 ‘Between loss and restoration: The role of liminality in advancing theories of grief and bereavement,’ Social Science & Medicine. Posted online 23 January 2024. Abstract (w. intro., section snippets, references)
10.3 ‘The self-help app My Grief: Bereaved parents’ experiences of helpfulness, satisfaction and usability,’ Internet Interventions. Posted online 17 January 2024. Full text
10.4 ‘Grief and bereavement support for parents in low- or middle-income countries: A systematic review,’ Journal of Pain & Symptom Management. Posted online 17 January 2024. Full text
10.5 ‘Continuing bonds in marriage, death and divorce: Conceptual and clinical considerations in the relationship to self and spouse,’ Omega – Journal of Death & Dying. Posted online 16 January 2024. Full text
10.6 ‘Long-term bereavement outcomes in family members of those who died in acute care hospitals before and during the first wave of COVID-19: A cohort study,’ Palliative Medicine. Posted online 16 January 2024. Full text
10.7 ‘Grief training in palliative care fellowships,’ Journal of Pain & Symptom Management. Posted online 10 January 2024. Abstract (w. intro., section snippets, references)
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11.2 ‘Non-religious afterlife: Emerging understandings of death and dying,’ Religions. Posted online 13 January 2024. Full text
11.3 ‘Dying a lonely death: A conceptual and normative analysis,’ Bioethics. Posted online 12 January 2024. Full text
11.4 ‘Exit Laughing: Moving beyond death anxiety to reflections on mortality,’ Psychology Today. Posted online 12 January 2024. Full text
11.5 ‘Managing estranged relationships at the end of life,’ International Journal of Whole Person Care, 2024;11(1):15-19. Full text (click on pdf icon)
Website Posting of Interest: ‘What matters most when you’re dying?’ Hospice UK, 12 January 2024.
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14.2 ‘Could peer-mentors support families of care home residents to prepare for deterioration and end-of-life? An interview study with families and care home staff,’ Health & Social Care in the Community. Posted online 16 January 2024. Full text
News Media Report of Interest: ‘Province forms new long-term care home investigations unit,’ Orillia Matters (Canada). Posted online 15 January 2024. Full text
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15.2 ‘Pediatric oncology hospice: A comprehensive review,’ American Journal of Hospice & Palliative Medicine. Posted online 15 January 2024. Full text
15.3 ‘Piloting a patient tool to aid palliative care referrals during advanced lung cancer treatment,’ Journal of Pain & Symptom Management. Posted online 14 January 2024. Abstract (w. intro., section snippets, references)
15.4 ‘The effects of integrative palliative oncology on health system burden,’ Proceedings of IMPRS. Posted online 11 January 2024. Full text (click on pdf icon)
15.5 ‘Predictive models for palliative care needs of advanced cancer patients receiving chemotherapy,’ Journal of Pain & Symptom Management. Posted online 10 January 2024. Full text
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16.2 ‘Death unpreparedness due to the COVID-19 pandemic: A concept analysis,’ Healthcare. Posted online 12 January 2024. Full text
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17.2 ‘Perspectives of telemedicine-based services among family caregivers of patients with end-of-life cancer: A qualitative study in mainland China,’ BMC Palliative Care. Posted online 12 January 2024. Full text
17.3 ‘Chatbot performance in defining and differentiating palliative care, supportive care, hospice care,’ Journal of Pain & Symptom Management. Posted online 12 January 2024. Abstract (w. intro., section snippets, references)
17.4 ‘Acceptance of digital health technologies in palliative care patients,’ Palliative Medicine Reports. Posted online 12 January 2024. Full text
17.5 ‘Leveraging clinical informatics to address the quintuple aim for end-of-life care,’ AMIA Annual Symposium Proceedings Archive. Posted online 11 January 2024. Full text
17.6 ‘Exploration of patient and clinician experience of video consultations in community palliative care,’ Journal of Pain & Symptom Management. Posted online 11 January 2024. Abstract (w. intro., section snippets, references)
17.7 ‘Perceptions and needs of an outpatient palliative care team regarding digital care conferences in palliative care: A mixed-method online survey,’ Swiss Medical Weekly. Posted online 3 January 2024. Full text
News Media Reports of Interest: ‘Palliative care via audio-only telehealth boosts quality of life,’ mHealth Intelligence (U.S.). 1 Posted online 19 January 2024.
N.B. Supplements #1-3 (2023) Download.