International Association for Hospice & Palliative Care

International Association for Hospice & Palliative Care

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William Farr, PhD, MD
Vice Chair


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African Palliative Care Associations First General Assembly
and Conference Arusha

The African Palliative Care Association was founded in 2003, to help support and promote the development of palliative care and palliative care professionals throughout Africa. It is made up of professionals and others with a special interest in the promotion of palliative care, and National and Local palliative care associations /programmes.

  • to share existing training programmes and education models
  • to share best practices
  • scaling up existing care
  • promotion of collaboration and networking

1ST June: - Arrival of GA delegates

2nd June:  First General Assembly
Arrival of the rest of the
                       delegates and registration

- Funder's Meeting

      3rd June: - Registration
                    - Opening keynote speech,
                      Theme groups and
                       Discussions

     4th June: - Theme groups,

                      Discussions and the way

                        Forward & farewell   
                      Evaluations,

    5th June: - Meeting for 12 PEPFAR countries (Bush Fund),

OUTCOMES

The formation of the first Board of Directors of APCA with committees responsible for Advocacy and definitions, Training, Standards of Care,

Those attending would leave with:

1. An understanding of APCA and its role in the development of palliative care and how it can help and support every country
2. Plan of the way forward for initiating or scaling up palliative care in countries at different stages of development (particularly those in the PEPFAR group).
3. A desire to share in the cohesiveness throughout Africa on the support of each other in development of palliative care especially for the most vulnerable in our countries.
4. Collaboration and better understanding of values and Ethos in the African context.
5. A better relationship with and understanding of donors of African

APCA,  Uganda
+256 41 266867
+25671585088
+ 265 41 510087
Email: [email protected]



EAPC

Research Forum of the European Association for Palliative Care

Dear Colleagues,

We have the pleasure to inform you that the Final Programme of the 3rd Forum on Research in Palliative Care including all oral communications is online.

You can visit it at
http://www.eapcnet.org/research2004/Programme/default.asp

You can also can download the pdf file of the overview of the programme.

Best Regards,

Franco De Conno,
Chair EAPC Research Network
Ukraine

Dear Colleagues,
Vale Hospice International, a 501(c)(3) foundation based in Vermont, is opening the first and only children's hospice ward in Ukraine at the First Kiev Hospice.
In light of its mission, patients of all ages are referred to our Hospice. The Kiev Oncological Center treats 350 children a year aged from 0-18. Regrettably, despite the efforts of the doctors, the children themselves, and their families, medical care is not always successful. About 40 will be diagnosed with the fourth stage of cancer, when only palliative care is prescribed. In other words, these children will die. But neither the children, nor their parents, need to feel that they have been abandoned to their fate.
Unfortunately, it is the practice in Ukraine and Russia to release the terminally ill from the Oncological Center and send them home. This is acceptable for those families who can create the conditions necessary for living with a cancer patient at home. But dying children from rural or impoverished areas of Ukraine have a long and difficult trek home. The elementary needs for keeping the cancer child at home are lacking. The parents of the children are exhausted both physically and morally. Sick children make their way home with great difficulty, often having to travel many miles in trucks because their family cannot afford the rail fare.
The First Kiev Hospice was not originally designed for children, but because of the dire need, on January 28th we began to equip the first, and as of now only, children's hospice ward in Ukraine. The first young residents of this new ward are already being admitted into the hospice.
It is vital that we create a special atmosphere for our children, one that is different from the drab, generic, colorless setting of a hospital. We have purchased furniture and equipment suitable for this special ward: comfortable chairs, cribs, child's beds, a large and soft carpet, colorful pajamas, towels, bright bed sheets, and toys and games. Our little patients also require a special diet - they eat sparingly, and we should like to offer them fresh fruits, juices, natural ice cream, candy, really, whatever they might like. Very sick children are still children. They play, they dance, they sing, they draw, they laugh, and they fool around, while they still have the strength. Shortly, Vale expects to equip the ward with a computer, more toys, and rocking horses. If a child's condition permits, we plan on taking the children to the zoo, on excursions, visiting those places they would like to see.
We are directly dependent on your support and assistance and are very grateful to those who have been helping us. In the first instance, we need to continue to underwrite medical support and relief of pain for these patients. Please help us!
Kindest regards,
Elisabeth Glinka
President of VALE Hospice Foundation
www.valehospice.org


Journal of Palliative Care  Seeks New Editor-in-Chief

Dr. David Weissman, who has provided exceptional leadership for the
Journal of Palliative Medicine since its inception, will be stepping
down as Editor-in-Chief later 2004. The American Academy of Palliative
Medicine and the Publisher, Mary Ann Liebert, Inc., are accepting
applications from qualified individuals for the position.

Please see the Call for Applications
http://www.aahpm.org/callforeditor.pdf for more information.





IAHPC Clearing House Project

Donate books and journals to be sent to colleagues in developing countries. Contact Here




Join IAHPC

Please consider joining the IAHPC's effort to improve palliative care in developing countries. We recently developed a new sliding fee schedule. Join by Clicking on this secure Membership Application -->

http://www.hospicecare.com/join.htm



Thanks to all contributors to this issue.

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