International Association for Hospice & Palliative Care

International Association for Hospice & Palliative Care

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Promoting Hospice & Palliative Care Worldwide

 

2005; Volume 6, No 10, October

 
IAHPC

IAHPC NEWS ONLINE

Many ways to help support palliative care.

Main Index:

IAHPC's Homepage

Message from the Chair & Executive Director:
Kathleen M. Foley, MD
Liliana De Lima, MHA


Article of the Month:
Dr. Ripamonti

Book Reviews:
Roger Woodruff, MD

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Anne Laidlaw

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Projects

WORLD HOSPICE AND PALLIATIVE CARE DAY –

8th OCTOBER, 2005  

“There are just a few days left before the first unified day of action to celebrate and support hospice and palliative care around the world but its not too late to take part. Here is the latest news.” Go to their website at the following URL:
www.worldday.org

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The National Consensus Project for Quality Palliative Care

Clinical Practice Guidelines for Quality Palliative Care  

There is useful information in the above document that can be modified in order to apply in locations outside the US. In the conclusion section of this document it states, “ These guidelines for quality palliative care programs represent a consensus opinion of the major palliative care organizations and leaders in the United States, and are based both on the available scientific evidence and expert professional opinion.”

For further information, the Guidelines are available in the internet at http://www.nationalconsensusproject.org/Guideline.pdf

or you can contact:
Ken Zuroski, Ph.D.
Project Coordinator
National Consensus Project
HPNA
One Penn Center West, Suite 229
Pittsburgh, Pennsylvania 15276
(412) 787-1002
FAX: (412) 787-9305
[email protected]

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From the Hospice and Palliative Nurse Association (HPNA)

"The National Consensus Project for Quality Palliative Care (NCP).

Clinical Practice Guidelines for Quality Palliative Care.

In 2001, a group of palliative and hospice care leaders from the USA met to discuss how palliative practice could best be standardized. The group formed the NCP Steering Committee, whose goals were to (1) define a process by which a national consensus on palliative care could be reached; (2) develop guidelines by studying model organizations and consulting experts; and then (3) disseminate those guidelines so that all stakeholders might benefit from the consensus of the field.

In 2004, following a process that invited input from more than one hundred experts, the NCP released the Clinical Practice Guidelines for Quality Palliative Care which (1) establish uniformly accepted definitions of set standards for developing new palliative care ) 2 ( palliative care; set goals regarding patient ) 3 ( initiatives and improving existing programs; foster continuity of palliative care across ) 4 ( access to palliative care; diverse health care settings (home, residential care, hospital, hospice, etc.).

This is the first set of clinical guidelines for palliative care in the U.S. As such, we believe that the Guidelines, if widely adopted, will play an important role in helping reduce the suffering of patients and their families with chronic or life-threatening illnesses.

The Guidelines are available on our website for free download at http://www.nationalconsensusproject.org.
A printed edition of the Guidelines can be purchased by visiting the NHPCO’s Marketplace at http://www.nhpco.org/marketplace/.

The NCP is funded by grants from Arthur Vining Davis Foundations and other philanthropic organizations."

Additional information can be obtained from:

Ken Zuroski, Ph.D.
Project Coordinator
National Consensus Project
HPNA
One Penn Center West, Suite 229
Pittsburgh, Pennsylvania 15276
(412) 787-1002
FAX: (412) 787-9305
[email protected]

The entire report may be viewed in pdf format at the following URL

http://www.nationalconsensusproject.org/Guideline.pdf

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Helping hands following Hurricane Katrina

From the Hospice Foundation of America

“Hospice Foundation of America Establishes Hospice Patient Locater Message Board at www.hospicefoundation.org in Response to Hurricane Katrina

  Our thoughts at Hospice Foundation of America go to those who have suffered catastrophic loss in the Gulf States . This special edition of our e-newsletter is being sent to inform you of a resource that may be of assistance; please watch for our regular September e-newsletter next week.

Hospice Foundation of America (HFA) has established an Internet-based bulletin board to help reconnect families to hospice patients in the areas affected by Hurricane Katrina. "Since the flooding began in the Gulf region, we have received numerous calls from families and friends of hospice patients who cannot locate their loved ones," said Jack Gordon, HFA chairman. "They are obviously distressed."

Family members will be able to post messages on the site, accessible at www.hospicefoundation.org, and hospice employees and others with knowledge of transfer arrangements will be able to contact those who have posted messages. Hospice care is delivered in a variety of places, including homes, nursing homes and assisted living facilities, inpatient and residential hospices.

If you are visiting our website, please consider visiting our donation page and designating a donation toward the Hurricane Katrina relief effort. All funds will be used to assist hospices in the Gulf States area, and HFA donations will first go to hospices in need of assistance as a result of the hurricane and flooding. Hospice Foundation of America will match donations received that are designated for this effort.

Caring for the dying is difficult under normal circumstances; hospices face especially daunting challenges during natural disasters. HFA hopes that the Hospice Patient Locater will provide some needed support for families and hospice professionals.

This newsletter is sent to more than 6,550 subscribers on the 2nd Wednesday of every month to keep you informed of what is happening in the fields of hospice, grief and bereavement, and caregiving, as well as what's new at HFA. We encourage you to forward this e-newsletter to an interested colleague or friend. Anyone can subscribe by sending an e-mail to [email protected].
If at any time you wish to unsubscribe, follow the instructions below.
Privacy Statement: In no case will we share e-mail addresses. See the full text of HFA's Privacy Policy.

This newsletter is published by Hospice Foundation of America
Jack D. Gordon, Chairman
David Abrams, President
http://www.hospicefoundation.org
Board of Directors: Thomas E. Bryant, MD, JD; Myra MacPherson; Priscilla Perry; Patricia Spulak; Thomas Spulak
© Hospice Foundation of America 2005”

Copied here as a public service.

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From The American Society of Clinical Oncology (ASCO)

“The American Society of Clinical Oncology (ASCO) continues to help coordinate treatment services for cancer patients displaced by Hurricane Katrina. For patients in need of acute care, it is important that their cancer treatment not be interrupted.

The following resources can be found at www.asco.org/katrina

Treatment Coordination Message Board: ASCO's Hurricane Katrina Message Board, searchable by keyword, is a physician/patient locator and communications tool. Messages are welcome from dislocated patients or from health care providers treating hurricane victims who need to consult with those patients' cancer doctors.

NCI Assistance: Because many displaced patients do not have internet access, ASCO and The National Cancer Institute (NCI) are collaborating to help connect patients with alternate cancer care providers, using NCI's toll-free operators who are aided by ASCO's online resources. Live assistance is available at 1-800-4CANCER between 9:00 a.m. and 4:30 p.m.-based on the callers' local time-Monday through Friday. NCI and ASCO are sharing updated information on a regular basis.

List of Oncology Practices Accepting Displaced Patients: ASCO is maintaining a continuously updated list of oncology practices in Louisiana, Mississippi, and Texas-as well as in several other states-that have indicated their ability to care for patients in need of urgent treatment during this time. Patients can call the listed doctors' offices or cancer centers to learn more about receiving treatment while they are unable to access their primary cancer care facilities.”

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Reports

An evaluation of a morphine public health programme for cancer and AIDS pain relief in Sub-Saharan Africa

By Dorothy E. Logie and Richard Harding
BMC Public Health 2005, 5:82     

Read at URL:
http://www.biomedcentral.com/1471-2458/5/82/abstract

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International Observatory on End of Life Care

Dear colleague,

The Observatory has recently posted the second of six Middle East country reports. For more information, click on the link below to view our new Jordan pages.

http://www.eolc-observatory.net/global_analysis/jordan.htm

Additionally, the Observatory is pleased to announce the addition of the Cyprus country report, details of which are available at the following URL:
http://www.eolc-observatory.net/global_analysis/cyprus.htm

Best regards,

Anthony Greenwood
Information Support Officer

International Observatory on End of Life Care
Institute for Health Research
Lancaster University
Lancaster LA1 4YG
United Kingdom

End of Life/Palliative Education Resource Center’s E-News
www.eperc.mcw.edu

There is a great deal of very good information regarding End of Life Care / Palliative care in the above website. Also you can sign up for the free E-news. This is a website worth visiting on a regular basis.

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Meetings

14th International Conference on AIDS and Sexually Transmitted Infections in Africa

Sponsored by the Society for AIDS in Africa (SAA)

December 4-9, 2005
Abuja , Nigeria

For information, registration and submission of abstracts for plenaries, roundtables and special sessions, please contact:

Dr. Uzodinma A. Adirieje
Program Manager
ICASA 2005

Plot 823 Ralph Shodeinde Street , the same compound with NACA, by

Federal Ministry of Finance Headquarters
Central Area
Abuja , Nigeria
Tel: 234(0) 9 672 0215, Mobile: 234(0) 803 472 5905
Emails: [email protected] and [email protected]
Web: www.icasa2005.org.ng

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Annual Assembly of the American Academy of Hospice and Palliative Medicine and Hospice and Palliative Nurses Association 

“Glenview, IL – The American Academy of Hospice and Palliative Medicine (AAHPM), in collaboration with the Hospice and Palliative Nurses Association, will host its Annual Assembly February 8-11, 2006, at the Renaissance Nashville Hotel in Nashville , TN. The conference is a platform for the dissemination of the evidence base, knowledge, skills, and philosophy to all disciplines that provide hospice and palliative care. Physicians, nurses, social workers, pharmacists and others who provide palliative care to the terminally-ill and dying are invited to attend. The event is expected to draw over 1,200 attendees.

Attendees will be able to participate in a full program of 60 concurrent sessions, 40 paper presentations, and three plenary sessions. Pre-conference workshops include: Communication Skills for Palliative Care Consultation, Providing Optimal Hospice Inpatient Care under the Medicare Hospice Benefit, Issues in Advanced Pain Management, Pediatric Diseases and What to Expect, and Appropriate Selection of Medications in Palliative Care.

AAHPM’s membership includes nearly 2,300 physicians and other medical professionals dedicated to excellence in palliative medicine and the prevention and relief of patient and family suffering. Since 1988, AAHPM has supported hospice and palliative medicine through advancement of clinical practice standards, fostering research, providing education, and through public policy advocacy. For more information about the 2006 Annual Assembly or membership in the Academy, contact AAHPM at 847/375-4712 or visit the web site at www.aahpm.org

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XVI International AIDS Conference

Sponsored by the International AIDS Society

Toronto, Canada
August 13-18, 2006

For information and registration:
http://www.aids2006.org/

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Third Annual Conference of the American Psychosocial Oncology Society (APOS)

16 – 19 February 2006
Amelia Island Plantation, Florida

About APOS

APOS is committed to advancing the science and practice of psychosocial care for people with cancer while s triving to ensure that all people with cancer have access to psychosocial services as a part of quality cancer care.

About the Conference

With the theme: The Synthesizing Research, Advocacy, and Program Development to Optimize the Quality of Care, the Conference includes seven concurrent half and full day preconference workshops, followed by two days of plenary and concurrent sessions, and yet a final half-day dedicated to advocacy organizations commitment to quality of life for survivors of cancer and the National Action Plan for the future.

For registration and information please contact APOS Headquarters:

American Psychosocial Oncology Society
2365 Hunters Way, Charlottesville, VA 22911 USA
Telephone: 434.293.5350
Facsimile: 434.971.4788
E-mail: [email protected]
Website: www.apos-society.org

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8th World Congress on Psycho-Oncology

International Psycho-Oncology Society (IPOS)

16 – 21 October 2006
Venice , Italy

About IPOS

IPOS is the international, multidisciplinary organization dedicated to fostering the science of psychosocial and behavioral oncology and improving the care of cancer patients and their families throughout the world. The vision of IPOS is that all cancer patients and their families throughout the world receive optimal psychosocial care at all stages of disease and survivorship.

About the Congress

PSYCHOSOCIAL ACADEMY (Preconference training)
Ferrara , Italy 16 – 17 October 2006

One and two-day workshops will address specific psycho-oncology topics. The leading worldwide experts will conduct the workshops for limited groups of participants.

Three days of plenary and concurrent sessions follow the two days of Academy trainings . The Conference theme, Multidisciplinary Psychosocial Oncology: Dialogue and Interaction , underlines the need for scientific societies, health care agencies and academic institutions, to work together, share and integrate their knowledge towards a common language and accepted standards in the comprehensive care of cancer patients, their families and caregivers.

For registration and information, please contact the Organizing Secretariat:

Avenue Media
Via Riva Reno 61
40122 Bologna, Italy
Telephone: +39.051.65.64.300
Facsimile: +39.051.65.64.350
E-mail: [email protected]
Website: www.ipos2006.it

Opportunities

The Temmy Latner Centre for Palliative Care is pleased to announce the:

Golda Fine Memorial Academic Award

Temmy Latner Centre for Palliative Care (TLCPC) at Mount Sinai Hospital in Toronto

The family of the late Golda Fine has established an annual award based at the Temmy Latner Centre for Palliative Care (TLCPC) at Mount Sinai Hospital in Toronto.

The award will honour local, provincial, national or international inter- disciplinary health care providers or academics who are working in the field of palliative/end-of-life care.

The award will allow the recipient to spend 2-3 months at the Temmy Latner Centre to learn and to teach.

ELIGIBILITY:
1. Academic appointment at a university recognized by the World Health Organization
2. Demonstrated interest in and/or experience in end of life care
3. Member of a recognized health profession or health administrator

AWARD AMOUNT: Two awards for $18,000.00 each

APPLICATION DEADLINE: October 31, 2005

For more information on Requirements, Selection Process and an Application Form please contact:

Jacqueline Kurji
Education Administrative Assistant
Tel: 416-586-4800 x 1532
Fax: 416-586-4804
E-mail: [email protected]

Mailing Address:
Temmy Latner Centre for Palliative Care Mount Sinai Hospital
600 University Ave.
Toronto, Ontario
M5G 1X5

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Ellison Institute for World Health at Harvard University

A new global institution, the Ellison Institute for World Health at Harvard University, is currently seeking distinguished candidates for the Global Fellows Program.

The mission of this groundbreaking new Institute is to improve population health and the efficiency of health-system resource use through the regular reporting of inputs, outputs, and impacts of the world’s health systems and major health funders. Fostering accountability for the achievements of health systems and major health actors requires global reporting of benchmarked measurement of spending, coverage of key services and interventions (preventive and curative), efficiency, and, most importantly, the impact of current policies and practices on population health. The work of the Ellison Institute for World Health at Harvard University is designed to provide key information that will help governments, bilateral donor agencies, multilateral institutions, foundations, nongovernmental organizations, and the private sector to improve their own performance.

Program Overview:

The Global Fellows Program is currently accepting applications for a two-year fellowship to work at the Ellison Institute for World Health at Harvard University in Cambridge, MA. Global Fellows will apply their core research skills in the areas of economics, public health, health policy, demography, and related fields with the expectation that they will make important research contributions for future international health policy.

Global Fellows will have abundant opportunities to collaborate with many faculty mentors within the Ellison Institute for World Health on a number of research areas, including: national health accounts, health intervention delivery, cost-effectiveness, mortality, burden of disease/comparative risk assessment, population health, health forecasts, financial risk protection, and efficiency of resource use. Fellows are expected to produce research deliverables related to the content priorities of the Institute, including: working papers, journal articles, and presentations for international conferences during their tenure at the Ellison Institute for World Health. In addition to receiving an annual salary, Fellows will have access to a full range of university resources, including health benefits.

Applicant Eligibility Requirements:

An MD and/or a PhD in health economics, health services research, statistics, epidemiology, public health, or related field or equivalent experience is required. Applications will be accepted on a rolling basis. This fellowship has a flexible start date of January 1, 2006 and a minimum starting salary of $45,000.

Interested applicants should forward an electronic copy of the following:

  • Letter of intent (describing the applicant’s research areas of interest)
  • One letter of recommendation
  • Curriculum vitae

Please send these documents via email to: [email protected] and include “Ellison Global Fellows Program” in the subject line of your email.

If you are unable to send us your materials via email, you may send them to us at the following address:

Ellison Institute for World Health at Harvard University
Global Fellows Program
104 Mount Auburn St. , 3 rd Floor
Cambridge , MA 02138 USA

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Resources

The Grief Resources Catalog

The Grief Resources Catalog offers over 50 different titles - several of them are very inexpensive, quick-read booklets... Many bereavement professionals have found that the materials on our site provide comfort to family, friends and loved ones of the deceased, ­ but many more could benefit from this resource if they just knew about it.

Dennis Williams
Grief Resources Catalog/Grief Encounters. Inc.”
www.griefresourcescatalog.com

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American Psychosocial Oncology Society (APOS)

APOS Institute for Research and Education (AIRE) Offers Online Education and Handbook

The Multidisciplinary Training in Psycho-Oncology includes fifteen webcasts in the five following tracks.

  • Introduction to Oncology
  • Program Administration
  • Symptom Detection and Management (eight webcasts)
  • Interventions (four webcasts)
  • Population-Specific Issues

ICAN: Distress Management Training for Oncology Nurses includes four webcasts toeducate oncology nurses on the recognition and management of distress among cancer patients and their caregivers.

Cancer 101 for Mental Health Professionals includes four webcasts to educate mental health professionals about cancer, its treatment, and common symptoms and side-effects.  Continuing education credits are available for psychologists, social workers and marriage & family therapists.

Psychosocial Aspects of Cancer Survivorship (u nder development) will include four webcasts to teach oncologists and nurses in primary oncology clinics how to rapidly identify the survivors who are distressed and to treat their distress or refer them to appropriate counseling resources.

Essentials in Psychosocial Oncology (under development), a pocket-sized handbook and downloadable PDA-format e-book, will include chapters on physical symptom management, communication issues, site specific issues and more.

To view webcasts and learn more about APOS programs, please contact APOS Headquarters:

American Psychosocial Oncology Society
2365 Hunters Way , Charlottesville , VA 22911 USA
Telephone: 434.293.5350
Facsimile: 434.971.4788
E-mail: [email protected]
Website: www.apos-society.org

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