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EAPC-East Newsletter
NR 22- May 2004
Reprinted with permission.
Council of Europe recommendations for palliative care
· What: this is a joint European project to disseminate the recommendations and get them well known by professionals, health care administrators and politicians and also lay people.
· When: the activities will be focused around the second week of October 2004 with the peak on October 11.
· How: Local organisers in palliative care organisations in collaboration with EAPC-east office will translate, print and distribute the recommendations. The recommendations will be a tool to use for information and lobbying. A media campaign, seminars and discussions will be the means to spread the content of the recommendations.
This is not a one man show. It will have to be several active people within a country and the more activities in connection with the press release the better.
You can find the lists of those who have agreed to take part including the contact address and also those who have been contacted by us and have not yet responded. The lists are accessible to down load under www.eapceast.org
Are you part of the activity in your country or region?
If yes keep in touch! If not get in touch!
Summary and plan:
November 2003 Council of Europe Recommendations signed by all 45 ministers
January 2004 EAPC-east Action plan on dissemination
February´ Invitation to palliative care organisations to take part
May 21 countries replied positive to participate
August Translations ready
September Printing
October 11 Press release
October onwards Seminars, discussions etc
April 2005 Presentation of activities, reactions and results in
Aachen - EAPC conference
Opioid legislation is changing in Romania
Romania is one of the several countries in Europe with a low consumption of morphine 2,17 mg per capita per year, well below the mean regional and global average. This is due to several existing barriers: the restrictive opioid law, inadequate training of physicians, patient's fears and reluctance to use this medication, etc.
After a resolute work for some years, with support from among others OSI, goal is in site.
It is expected that the new law will pass through the parliament later this year. Having a good law is just the first step. What follows is producing the regulation process that is expected to take another 3 months. Please read the report on down load from www.eapceast.org
Hungarian -Georgian collaboration on palliative care development in Georgia
The most inspiring task of all is to be able to help distribute information about when sharing actually takes place. Please read the report (1 page) on the educational project between Hungary and Georgia, sponsored by OSI. It can be down loaded from www.eapceast.org It is worth while!
National consensus for Quality palliative care in the US
The US National Consensus Project For Quality Palliative Care has released Clinical Practice Guidelines for Quality Palliative Care on April 30, 2004. This is a significant achievement in the US and might prove useful in all our countries. The complete guidelines may be downloaded on their website. I encourage you to review the guidelines to be informed and inspired by. www.nationalconsensusproject.org
ABC on palliative care - BMJ - British Medical Journal
Please find an article on The last 48 hours by Jim Adam to down load from the web site www.eapceast.org
Congress in Montreal on the Terminally ill
The 15th International Congress on "Care of the Terminally Ill" September 19-23, 2004 in Montreal. For information please go to http://www.eventsintl.com/pal2004
Journals to be sent to those interested
Supportive Care in Cancer from 2001 and 2002, 3 volumes, Cancer Nursing 5 volumes 2002-2003, Acta Oncologica 6 volumes 1998 - 2003.
Please let us know if you are interested in receiving them and if you are which journals interest you the most.
Finally, people in palliative care are usually committed people. The commitment in the e-mail addresses are not as reliable with viruses, servers brake down etc. We have problems with e-mails bouncing back.
If you know the current address to people below please let us know.
Fatimir Prifti, Albania ryderalbania@albaniaonline. net
Elisabeth Framer, Albania [email protected]
Ester Myong soon Shin, Albania [email protected]
Davorka Marcovic, Bosnia and Herzegovina [email protected]'
Maja Banjin, Bosnia and Herzegovina [email protected]'
Ignat Hristov Peterov, Bulgaria '[email protected]'
Zlatina Naneva, Bulgaria [email protected]
Ilona Binkova, Czech Republic '[email protected]'
Ferenc Alfoldy, Hungary [email protected]
Edita Joudzbailene, Latvia [email protected]
Olga Podmoghilnaia, Moldova [email protected]'
Miroslav Batko, Poland [email protected]
Vasilie Suruceanu, Romania [email protected]
Kemerova Region Hospice, Russia '[email protected]
Yaroslavl Hospice Centre, Russia [email protected]
Tatiana Moltcheva, Russia '[email protected]'
Rumen Sabov, Russia [email protected]
'Sergei Yakuslin, Russia [email protected]
Olga Sadovska, Slovakia' [email protected]
Katarina Zolnirova,Slovakia '[email protected]
Larysa Matyukha, Ukraine [email protected]
Kristopa Michael,Ukraine [email protected]
Irina Zadusknova, Ukraine [email protected]
In order to be able to inform you all we need is to get information from you. Please let us know what is happening and share with us the achievements and problems that might be of interest for others.
Looking forward to be in contact!
Sylvia Sauter Carl Johan Fürst
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