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"Promoting Hospice and Palliative Care Worldwide"


2004; Volume 5, No 8, August


Paediatric Palliative Care
Excerpts from a newsletter from Australia

Reprinted in part with permission


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Stefan J. Friedrichsdorf, MD, Fellow, Paediatric Pain & Palliative Care
The Children's Hospital at Westmead
Sydney / Australia

Office: +61-2-9845 1089
[email protected]
[email protected]

Newsletter Paediatric Palliative Care July 2004

Conferences & Workshops

Home Care for Seriously Ill Children: A Manual for Parents.

Online Journal "The Suffering Child" Education in Paediatric Palliative Care

Conferences & Workshops

25-28 August 28 2004, Copenhagen, Denmark
"Understanding diversities - development of strategies for psychosocial oncology"

13-19 September 2004, Highfield, Southampton, UK
Developing and Managing Human Resources in Palliative Care.
Sponsored by the University of Southampton
[email protected]

15–18 September 2004, Oslo, Norway
SIOP 2004: International Society of Paediatric Oncology (SIOP).

16-17 September 2004, Coogee Beach, Sydney, Australia
Across the Spectrum in Palliative Care
Palliative Care Association of NSW
[email protected]

16-18 September 2004, Auckland, New Zealand
Making Contacts : The Joint ANZSPM and 16th Hospice New Zealand Palliative Care Conference

19-23 September, 2004, Montreal, Canada
15th International Congress on Care of the Terminally Ill

26-29 September 2004, Edinburgh, UK
Children's Hospice International 16th World Congress
"Completing the Circle of Care"
In partnership with Association for Children with Life-threatening or Terminal Conditions (ACT)
Children’s Hospice Association Scotland (CHAS)

29 September – 2 October 2004 – Bucharest, Romania
International Congress on Palliative Care: Experiences & Perspectives

14-17 October, 2004, White Point Beach Resort, Nova Scotia, Canada
International Forum on Pediatric Pain

12-14 November, 2004, Dearborn, Michigan, USA
NHPCO's First National Conference on Pediatric Palliative and Hospice Care
National Hospice and Palliative Care Organization

2-3 December 2004, Cardiff, UK
2nd International Cardiff Conference 2004
Paediatric Palliative Care
Evidence – Who needs it?

17-19 February 2005, Recklinghausen, Germany
3rd Conference on Children’s Pain Management and Paediatric Palliative Care [3. Dattelner Kinderschmerztage – Kongress für Kinderschmerztherapie und pädiatrische Palliativmedizin]
(Conference language: English and German)

4 March 2005, Sydney, Australia
Annual Paediatric Palliative Care Symposium
Pain & Palliative Care Department, The Children’s Hospital at Westmead Email:
[email protected]

6-10 April 2005, Aachen, Germany
9th Congress of the European Association for Palliative Care and 5th Congress of the German Association for Palliative Medicine

17-21 August 2005, Vancouver, Canada
World Gathering on Bereavement


Home Care for Seriously Ill Children: A Manual for Parents
There is a section on relief of pain and other symptoms that is useful for parents caring for a child in any setting.
This manual is available at

Online Journal "The Suffering Child"
available on

Some of you may have heard of End of Life Nursing Education Consortium (ELNEC) under the direction of Dr.'s Betty Ferrell and Marcia Grant. This August they will sponsor the second 'train the trainer' program for Pediatric Palliative Care in Pasadena California. I have been privileged to be part of the advisory group of Pediatric Pal Care nursing professionals who have contributed to the content of this course and can testify to the excellent content and materials that are provided to participants. More information is available at their web address

We at the University of the West of England offer a nshort taught post basic module run at diploma and degree level entitled 'Children's Palliative Care' It can be taken as a stand alone module or as part of a variety of ongoing degree and diploma courses. We are considering offering this 'on line' in the near future. The next course comences in March 2004, and there are still
vacancies. Further details from the course leader - Maggie
Whittle, Senior Lecturer Children's Nursing. Tel 0117
E Mail [email protected]

Online paediatric palliative care courses

The National Center for Death Education, Mount Ida College, in collaboration
with the National Hospice and Palliative Care Organization, offers an online pediatric palliative care series. No special software or advanced computer skills are needed. Students can read lecture notes and participate in discussion at their convenience, day or night and regardless of time zone. Topics include an introduction to pediatric palliative care, pain and symptom management, and psychosocial care and bereavement.
For more information visit the website at