This course is in partnership with the International Neuropalliative Care Society (INPCS). The goal of this course is to increase the palliative care knowledge and skills of those managing patients with neurological conditions.
Target audience
The target audience is health care professionals working in limited resource settings, including:
- Physicians and nurses working in palliative care who encounter patients with neurological conditions.
- Neurologists who encounter patients with palliative care needs.
- Other health care professionals (primary care clinicians, physical therapists, rehabilitation specialists, social workers, etc.) who interact with patients with neurological conditions and their families.
The course is offered to IAHPC and INPCS members. It will be presented in live, recorded sessions and uploaded to the IAHPC website. The sessions we are planning will covering various topics relevant to palliative care in neurological conditions.
Learning objectives
This course is designed to increase the knowledge and skills necessary to provide patient-centered palliative care to patients with neurological conditions.
The curriculum covers different neurological conditions and basic principles associated with assessment, effective pharmacologic and non-pharmacologic treatment options, and appropriate therapeutic regimens. In addition, several modules will include caregivers and patients who will share their experiences with the participants.
Participants who complete all modules will receive a certificate of completion of the course.
Requirements
Current IAHPC and INPCS members. Join or renew your IAHPC membership.
Modules and Speakers
| Date | Module | Faculty | Patient/ Caregiver | Topic | |||
|---|---|---|---|---|---|---|---|
| June 13 | 1 |
Prof. Audrey Foster-Barber Professor of Child Neurology University of California San Francisco (UCSF) Benioff Children’s Hospital, USA |
|
Erica Baer Darlene Spicer |
|
Palliative Care in Children with Neurological Conditions Panel Discussion with Parents of child with chronic neurologic illness |
Access |
| June 20 | 2 |
Dr. Simone Veronese Head of Research, Fondazione FARO ETS Turin, Italy |
|
Charles White |
|
Palliative Care in Persons with Multiple Sclerosis Panel Discussion with Person with Multiple Sclerosis |
Access |
| June 27 | 3 |
Dr. Jessica M. Besbris Director of Neuropalliative Care, Cedars-Sinai Medical Center Los Angeles, USA |
|
Sarah Gibson |
|
Palliative Care in Persons with Brain Tumors Question and answer with person with brain tumor |
Access |
| July 4 | 4 |
Dr. Mataa Mataa Neurologist, Chipata level one hospital Lusaka, Zambia |
|
Ms. Rose Adams |
|
Neuropalliative care and Spiritual care in Alzheimer's disease and related disorders in low resource settings. Panel Discussion with caregivers of persons with Alzheimer’s disease. |
Access |
|
Rev. Richard W. Bauer, BCC George Washington Institute for Spirituality and Health Washington DC, USA. |
|
Mr. Steve Miyanda |
|
||||
| July 11 | 5 |
Prof. Whitley Aamodt Assistant Professor of Neurology University of Pennsylvania Philadelphia, USA |
|
Bernadette Skobjak |
|
Palliative Care in Persons with Parkinson’s Disease and Related Disorders Question and Answer with Care partner of person with Parkinson’s Disease |
Access |
| July 18 | 6 |
Prof. David Oliver Honorary Professor Tizard Centre, University of Kent, UK |
|
Karen Saunders |
|
Palliative Care in Persons with Amyotrophic Lateral Sclerosis. Panel Discussion with person with ALS. |
Access |
| July 25 | 7 |
Dr. Andrew Huang Research Instructor University of Rochester New York, USA |
|
Sameerah Baker |
|
Palliative Care in Persons with Severe, Acute Brain Injury. Panel discussion with care partner of person with acute severe brain injury. |
Access |
Moderators
Prof. Russell Portenoy, MD
IAHPC Senior Adviser Education and Research and Clinical Professor, Voluntary, Department of Family and Social Medicine, Albert Einstein College of Medicine, New York, USA
Lukas Radbruch, MD
Chair of the IAHPC Board of Directors. Director of the Department of Palliative Medicine, University Hospital Bonn, in Germany, and Director of the Palliative Care Centre, Helios Hospital Bonn/Rhein-Sieg
Dr. Andrew Huang, MD
Research Instructor, University of Rochester, New York, USA
Katherine Irene Pettus, PhD
IAHPC Senior Advocacy and Partnerships Director, USA
Robert G. Holloway, M.D., M.P.H.
Professor and Chair of the Department of Neurology and Professor in the Department of Community and Preventive Medicine, at the University of Rochester Medical Center, in Rochester, NY
Disclaimer
The information contained in this course is presented for the purpose of educating health care providers about certain aspects of pain and palliative care. The Information should not be relied upon as complete or accurate, nor should it be relied on to suggest a course of treatment for a particular individual. Patients with health care related questions or concerns are advised to contact a physician or other qualified health care provider.
The information contained in this course is provided "As Is" without warranty, express or implied. The IAHPC make no warranty as to the reliability, accuracy, timeliness, usefulness, adequacy, completeness, or suitability of the Information.
Whilst every effort has been made to ensure that the patient care recommendations in this course are correct and in keeping with accepted standards of practice, the authors, and the IAHPC cannot be held liable or responsible for any errors or omissions, or for any harm or damage resulting from the use of the information contained in this course.