The primary focus of this literature search is selected articles, etc., on key issues in end-of-life care for which the full text is available online. Added, however, are a few noteworthy articles, etc., but for which access to the full text is available only with a subscription or for a one-time fee for the article in question.1 Also listed are a few postings of special interest on key websites that serve the hospice and palliative care communities-at-large, and selected news media reports. The next listing will be published in approximately two months.
Articles of particular interest.
Libraries in educational institutions and medical centres may have a subscription to the journal in question and hold a photocopying licence, which may facilitate cost-effective access.
1.2 ‘Service level characteristics of rural palliative care for people with chronic disease,’ Journal of Pain & Symptom Management. Posted online 20 June 2023. Abstract (w. introduction, section snippets, etc., references)
1.3 ‘Palliative care in rural areas – collaboration between district nurses and doctors...,’ BMC Palliative Care. Posted online 15 June 2023. Full text
1.4 ‘Challenges and strategies to improve the provision of end-of-life cancer care in rural and regional communities: Perspectives from Australian rural health professionals,’ Australian Journal of Rural Health. Posted online 31 May 2023. Full text
6.2 “When a patient chooses to die at home, that’s what they want… comfort, home”: Brilliance in community-based palliative care nursing,’ Health Expectations. Posted online 9 June 2023. Full text
6.3 ‘Indonesia’s unique social system as key to successful implementation of community- and home-based palliative care,’ JCO Global Oncology. Posted online 8 June 2023. Full text
6.4 ‘Enhancing palliative care at home: A generalist community nursing case study,’ Australian Journal of Advanced Nursing. Posted online 31 May June 2023. Full text
N.B. Scroll down to ‘Selected News Media Reports’ and ‘Few patients dying on home-based palliative care service...’
N.B. Scroll down to ‘Call for Papers’ and ‘Mental illness in the context of palliative care.’
9.1 ‘For medically fragile kids, access to palliative care depends on family resources,’ California Health Report. Posted online 7 June 2023. Full text
10.2 ‘Caring for each other: End-of-life behind bars,’ International Association for Hospice & Palliative Care Newsletter. Posted online 8 June 2023. Full text
N.B. See ‘Challenging the Inequities in Palliative Care Provision for People in Prison: Policy, Research and Practice,’ European Association for Palliative Care, 18th World Congress, 15-17 June 2023. Conference abstracts
N.B. Scroll down to ‘Call for Papers’ and ‘Paving new and inclusive theoretical paths in organizational research on equity, diversity, and inclusion.’
12.2 ‘Palliative care and COVID-19 pandemic between hospital-centric based approach and decentralisation of health services: A valuable opportunity to turn the corner?’ EuroMediterranean Biomedical Journal, 2023;18(7):34-39. Full text
4.2 ‘Evaluation of service user-led workshops in children’s palliative care education,’ Nursing Children & Young People. Posted online 19 June 2023. Abstract
4.3 ‘Academic-clinical collaborations to build undergraduate nursing education in hospice and palliative care,’ Journal of Gerontological Nursing. Posted online 1 June 2023. Full text
4.4 ‘Training proposal in palliative care for primary care nurses in a health area in Spain,’ Nursing Reports, 2023;13(2):890-901. Full text
4.5 ‘Identifying enablers and barriers of palliative care learning in undergraduate nursing education: Systematic narrative review,’ Indonesian Nursing Journal of Education & Clinic, 2023;8(1). Full text (click on pdf icon)
1.2 ‘Left behind in pain: Extent and causes of global variations in access to morphine for medical use and actions to improve safe access,’ World Health Organization. Posted online 16 June 2023. Download WHO report
1.3 ‘Global disparity and opiate crisis imbalance,’ The American Journal of Surgery. Posted online 9 June 2023. Abstract (w. references)
1.4 ‘Global analysis of adequacy of prescription opioid consumption across 214 countries and territories,’ medRxiv (Pre-print). Posted online 1 June 2023. Full text (click on pdf icon)
N.B.Link to ‘Value of Hospice in Medicare,’ published by the University of Chicago, embedded in MedCity report.
3.2 ‘Perceptions of palliative care: Demographics and health status among the general population in Florida and the United States,’ American Journal of Hospice & Palliative Medicine. Posted online 28 June 2023. Abstract (w. references)
3.3 ‘Explaining disparities in end-of-life cancer care,’ Journal of Clinical Oncology. Posted online 20 June 2023. Full text
3.4 ‘Place of death from cancer in U.S. states with vs without palliative care laws,’ JAMA Network Open. Posted online 8 June 2023. Full text
3.5 ‘Why palliative care offerings can be a differentiator for home health providers,’ Home Health Care. Posted online 31 May 2023. Full text
1.2 ‘Increased patient satisfaction by integration of palliative care into geriatrics: A prospective cohort study,’ Plos One. Posted online 22 June 2023. Full text
1.3 ‘Global geriatric palliative care,’ Clinics in Geriatric Medicine, 2023;39(3):465-473. First page view
2.2 ‘Palliative care to support the needs of adults with neurological disease,’ The Lancet (Neurology), 2023;22(7):619-631. Summary (w. references)
2.3 ‘Palliative care in amyotrophic lateral sclerosis,’ Journal of Pain & Symptom Management. Posted online 25 June 2023. Abstract (w. introduction, section snippets, etc., references)
2.4 ‘Adopting a palliative care mindset is an unmet need in Parkinson’s...,’ Clinical Parkinsonism & Related Disorders. Posted online 20 June 2023. Full text
2.5 ‘Improving collaboration between palliative care and neurology: Focus on patient, family and healthcare provider experience,’ Alzheimer’s & Dementia. Posted online 16 June 2023. Abstract
2.6 ‘Guideline “motor neuron diseases” of the German Society of Neurology (Deutsche Gesellschaft für Neurologie),’ Neurological Research & Practice. Posted online 15 June 2023. Full text
2.7 ‘The current state of neuropalliative care in developing countries...’ Postgraduate Medical Journal. Posted online 10 June 2023. Abstract
2.8 ‘Palliative and end-of-life care for people living with motor neurone disease: Ongoing challenges and necessity for shifting directions,’ Brain Sciences. Posted online 7 June 2023. Full text
3.2 ‘Challenges and innovations in hospice care during the COVID-19 pandemic: A scoping review,’ Journal of Social Work in End-of-Life & Palliative Care. Posted online 30 June 2023. Full text
4.2 ‘Nursing in deathworlds: Necropolitics of the life, dying and death of an unhoused person in the United States healthcare industrial complex,’ Nursing Philosophy. Posted online 18 June 2023. Full text
N.B. Scroll down to ‘Selected News Media Reports’ and ‘Unhoused Americans have few places to turn when death is near.’
5.2 ‘Can digital health close the health equity gap in palliative care?’ Cancer Nursing, 2023; 46(4):251. Full text
5.3 ‘Endoflife dignity in palliative care, pandemic COVID19 and telemedicine,’ Journal of Clinic al & Scientific Research, 2023;12(2):140-148. Full text
8.2 ‘Perinatal palliative care in sub-Saharan Africa: Recommendations for practice, future research, and guideline development,’ Frontiers in Pediatrics. Posted online 26 June 2023. Full text
8.3 ‘The roles of preparation, location, and palliative care involvement in parent-perceived child suffering at the end of life,’ Journal of Pediatric Nursing. Posted online 22 June 2023. Abstract (w. introduction, section snippets, etc., references)
8.4 ‘Palliative care for children: Methodology for the development of a clinical practice guideline,’ Research Square. Posted online 16 June 2023. Full text
18.2 ‘Assessing the quality of care for people dying of cancer in hospital – development of the QualDeath framework,’ Australian Health Review. Posted online 7 June 2023. Abstract
18.3 ‘National Audit of Care at the End of Life (NACEL): Dying in hospitals,’ Clinical Oncology (Pre-proof). Accessed 2 June 2023. Full text
N.B. NACEL measures the experience of care in hospitals at the end of life (EoL) for dying people and those important to them, to identify areas for service improvement, and to provide a strategic overview of progress with the provision of high-quality care at the EoL in England, Wales and Northern Ireland.
N.B. ‘Access to Palliative Care In Canada,’ Canadian Institute for Health Information. Posted online 27 April 2023.
N.B. ‘Left behind in pain: Extent and causes of global variations in access to morphine for medical use and actions to improve safe access,’ World Health Organization. Posted online 16 June 2023. Download WHO report
1.2 ‘Palliative care doctors warn of “terrible pain” if liquid morphine Ordine discontinued in Australia,’ ABC Radio News. Posted online 1 July 2023. Full text
N.B. Link to ‘Spotlight on Home-Based Palliative Care,’ published jointly by the Center to Advance Palliative Care and the Palliative Care Quality Collaborative, embedded in the McKnight’s Home Care article.
2.2 ‘Unhoused Americans have few places to turn when death is near,’ PBS News Hour (Chattanooga, Tennessee). Posted online 16 June 2023. Full text
3.2 ‘Between 5,000 and 8,000 Bulgarian children need daily palliative care: Services are inadequate,’ ArmenPress. Posted online 19 June 2023. Full text
4.2 ‘Center to Advance Palliative Care Chief Executive Officer Brynn Bowman: Palliative care a fundamental shift in health system,’ Hospice News. Posted online 30 May 2023. Full text